Monday, December 15, 2008

Love You Mom! Goodbye!

Mom, enjoying a rare patch of sunshine, just one week ago.




She died this morning at 8:40AM. Sometime after 4AM she had a massive bleed in her brain. We got the call from the nursing home at 5:35AM that she was on her way to the hospital. She was found in a non-responsive state and never regained consciousness. We were with her right until the end. I held her and kissed her, Mike holding her hand, and we told her we loved her so much and that she shouldn't be afraid that we were there for her as long as she needed us. Words. Only words. Maybe she heard us. Maybe she didn't.

One thing she knew well, and I will apparently never learn, is how to live in the present. Live and love like it's the last day you have together.

We saw her last night only briefly. Normally we'd stay longer, or take her out of there for a few hours on the weekend, but yesterday I was pretty sick and needed to go back home. I told her I felt badly about it. She told me not to and hoped I felt better.

Oh, had I only known.

Love you Mom! Goodbye!!

I miss you! You're a special lady. I only hope you knew that, too.

Sunday, November 2, 2008

Fixin' A Hole

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So, Mom no longer has an open PFO, or hole in her heart. Last Wednesday she had the device closure procedure at Munroe Regional. The cardiologist used a Helex device, and everything went well. Mom said the procedure went fine, but that afterwards was not so fine. She was very uncomfortable, I think. And she doesn't seem to agree with the Versed and whatever else they gave her. At any rate, one more stroke-causing issue has been struck from the list.

Thursday, October 9, 2008

Small Rewards


Mom got a cookie on Monday. Wait, let me back up a bit. I've got a little catching up to do.

On July 26, Mom had yet another stroke- her third this year. She hadn't even finished her home health care from the last one. She spent most of the next week in ICU again. The first 2 days were rough- she was quite agitated the second night, ripping out her IVs and trying to leave. I'm sure that was due to disorientation brought on by the stroke itself. They gave her Haldol to calm her down, which made her a zombie for the next week or so. Finally, she was discharged to another skilled nursing facility, and is still there. Since I figured it would be demoralizing for her to be back in the same place as before, I pushed to get her to a different (and better) one. It worked, and we're all happy about it.

This time we weren't as lucky as the last 2 strokes, where she was able to move her left side fairly quickly. Her left side is only very slowly coming back. She can move her leg a bit and walks quite a ways with assistance, but now has foot drop. She's been fitted for a brace, which helps tremendously with walking. Her left arm/hand may only come back later.

She had escaped aphasia for the most part the previous times, but not so this round. It's such a struggle for her to speak at times, that unless she's well rested and energetic, I don't know what she's trying to say. She's improving, as ever, though. Dysphagia is also something she'll probably always have to deal with, which is where I come back to the cookie. On Monday she was able to pronounce the word cookie, and so was given a cookie for reward- her first cookie, I might add, since July 26th. Yesterday the word 'excellent' was the accomplishment. She may come off the puree diet very soon.

Though her memory is affected somewhat, her sense of humor is quite lively- always cutting up with the nurses and CNA's. They all seem fond of her. This means a lot to me, and not only for the obvious reasons. Whenever I go see her, I am deeply affected by the faces of the other residents there, especially when they're gathered in the dining room. I can't help but wonder what stories they might have to tell; where are their families, or if they have any. I just can't imagine what how they feel or what they're thinking.

Today we took Mom to a cardiologist in Ocala to discuss the closure of the PFO (patent foramen ovale) in her heart, which could be responsible for passing clots. The best option for her is what is called a device closure, which she's opted for. The benefits far outweigh the risks for her and would reduce the likelihood of another event like she's been having. All 3 MRI's following each stroke have shown no change, nothing new.

Tuesday, June 24, 2008

Home

Finally, Mom came home a week ago today. She gets around okay with her walker, but her left side, especially her leg, still is an issue. She once again gets physical therapy for six weeks, and so hopefully more progress will be made. This last stroke knocked the wind out of her sails, for sure.

The road is rocky this time around, and we're doing our best to hang in there together.

Saturday, May 24, 2008

No News...



is good news. Though Mom is still in the 'joint', as I call it (skilled nursing facility), she's hanging in there and doing okay. My brother sent her a lovely bouquet for Mother's Day, which I captured on my new (for me) Pentax ME Super. Not bad for a 25 year-old camera.

The visit to the vascular neuro-surgeon resulted in his stating that she did not have an aneurysm in the basal artery in the pons or stem area of her brain. Instead, it is a diseased (enlarged) vessel, perhaps from her past uncontrolled hypertension. At any rate, it is not operable. We got up before dawn for this appointment, so I documented it. You'd better believe it. If I'm up in time to greet Father Sun, I'm getting proof!

Saturday, May 3, 2008

Accomplishments


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Originally uploaded by Madrigalrose
Baby steps, as they say. Hearing that repeatedly can get annoying after a while, but sometimes it's all too true.

Mom is, as ever, very lucky. Many people wouldn't have use of the side affected by so many strokes, but she still does. It's weak, but she's working on it.

Thursday, May 1, 2008

Stroke Awareness Month

May is National Stroke Awareness Month

In honor of this I am going to be getting Mark McEwen's book Change in the Weather: Life after Stroke. He has a very positive attitude, which Mom needs right now. Come to think of it, so do I.